Wednesday, January 26, 2011

Checking for Cystic Fibrosis

As many long-time readers of my blog may know, I have a darling niece named Ellie.  Ellie is the daughter of my older brother Matt and his wife Jennifer, and is just a few months younger than Ashley.


Ellie also has cystic fibrosis. 

Cystic fibrosis is a devastating genetic disease that affects the lungs and digestive system.  Ellie has to take enzymes prior to eating and has daily breathing and percussion treatments to help keep her digestive system and lungs healthy.  There is no cure.  You guys, back in 1955, children with cystic fibrosis were not expected to live long enough to attend grade school.  Grade school!  Can you even imagine?  Today, the average life expectancy is up to 37 years old.  That's incredible progress.  

But it's not enough.  Because as you can see, Ashley and Ellie are best buds.


In fact, they're both starting kindergarten next year. And first grade after that. And then junior high, and high school, and college. And then they're both going to graduate, and get awesome jobs, and find the love of their lives, get married, have kids, the whole shebang. And by the time they reach my age, I'm sure they're going to feel like I do - that the best is yet to come.

They're BOTH going to be able to do anything that they dream they can do. They're BOTH going to live long, healthy, wonderful lives. Because we WILL find a cure. Nothing is going to take Ellie away from my Ashley. Not if I can help it.

And not if my family can help it either.  One of my younger brothers - Andy - has organized an amazing fundraiser - the Checking for Cystic Fibrosis Tournament.  Andy's a paramedic and has basically gathered up all his paramedic and other public safety agency buddies for a huge hocky tournament to raise money for the Cystic Fibrosis Foundation.  It will be held on Sunday, February 27th at the National Sports Center - Schwanns Super Rink near St. Paul, MN.

This is actually the second year Andy has organized this fundraiser.  Last year it raised over $10,000.  $10,000, people!!!!  I still can't believe that my little bro went out there and did something *that* amazing for Ellie.  I don't have the words to describe how awesome he is.

So this year, I'm trying to pitch in and do something too.  So I ask you, if I've ever made you laugh here on my blog, or smile, or if I've ever brightened your day just a little bit, please consider donating to support Andy's fundraiser for the Cystic Fibrosis Foundation.  Please help us find a cure.  Do it for me.  Do it for Ashley.  Do it for Ellie.

You can donate by clicking here.  And if you can't donate, please send a prayer and/or good thoughts for Ellie's continued health.  We've been so lucky so far with her...and we want to keep it that way. 

Thank you everybody! 


Jen said...

That is a beautiful thing he, you, are doing.

Brandy@YDK said...

such a sweet post. Ellie is very lucky to have advocates like you.

wonderchris said...

Donated. I hope they remain friends for a VERY long time!!!

What a great cause!

Emily said...

Thrilled to be able to participate in the search for a cure for CF on behalf of your brother's Ellie, my friend's Lauren, and any of my future descendants who inherit my CF carrier gene. Praying for them all.